Vaccines Did Not Cause my Son’s Autism

Almost inevitably, when I mention to someone unfamiliar with autism that my son is autistic, they begin talking about vaccines. Sometimes they proudly tell me how they have not had their own children vaccinated. Sometimes they go off on a screed against scientists, drug companies, government agencies or the establishment in general. If they do ask my opinion, it is to confirm their own fears: I have heard about the link between autism and vaccines, haven't I? They shouldn't have their own children vaccinated, should they? They have seen enough stories in the media and heard enough talk going around that they accept that there is some link between vaccines and autism and are suspicious when I say that's simply not the case. They see my son as damaged and defective, injured by the vaccines that were supposed to help him. They imply that I was at best ignorant or naive and at worst foolhardy and rash to have had my son vaccinated.

Here's the thing about autism, it appears on a spectrum. Every autistic child (heck, every child, lest we forget) is different, and autism presented itself differently in each and every one. The sensational news stories that people have seen on TV linking vaccines to autism show just one of the many ways autism presents itself. The stories generally show pictures and videos of a baby or toddler who is smiling, talking and interacting. Then we are told that days or weeks after receiving the MMR vaccine, this child became completely non-verbal and ceased to interact with others. The child suddenly became autistic and the parents blamed the vaccine. Now who knows, if my child changed dramatically one day, I might blame a vaccine too, but my child (and many, many others like him) didn't.

Before my son was born, he reacted so powerfully to sounds that I used to joke that he was going to be a musician. Whenever we were exposed to loud noises (most often music), I'd be treated to a series of violent, jerky movements as he twitched and thrashed in utero. He was hypersensitive to sound. It was strangely different from my daughter's serene rolling kicks, and her obliviousness to the same external noises that made her brother dance madly inside me.

When my son was born, he cried, constantly. Nothing comforted him except breastfeeding, which I did almost non-stop, day and night, for months. The very first night he was born, I lied to the nurses at the hospital about how much time I spent holding him and nursing him, because when I told the truth they told me he didn't need that much, but if I stopped, he'd cry in these high-pitched piercing wails, like he had flames licking at his body, like needles were piercing his flesh. It didn't help to hold him or sing to him or rock him.

I came to feel like a shell shocked war veteran, cringing and screaming at cars backfiring or news helicopters passing overhead. I felt like I was living with a fire siren wired to a time bomb. He could go off at any time, with those horrible, inhuman screams. I didn't leave the house with him until he was three months old. When my daughter was born, I thought, "Oh, so this is what babies are supposed to be like! This is why people like and get nostalgic for infants." She cried normal baby cries; cries that said, "Hey, Mama, it's time for more milk" not the soul splitting "Mama, please, please help me! Help me! Help me, Mama, please!" that I heard in my son's cries, day and night for nearly all of the first year of his life.

When my son was about six or seven months old, I went to the hair dresser and overheard another woman there talking about her daughter, who was just about my son's age. She talked about how cute it was when her daughter waved bye-bye. "That's funny," I thought, "my son's never done that. Oh, well. Girls are more social than boys. I wonder when he'll start." He didn't start waving until he was nearly a year and a half, and when he did, he would hold his hand with the palm facing his own face, as if he were waving at himself. (It was ridiculously cute.)

Before he was one year old, he stopped eating anything new. He wouldn't even try the birthday cake I made him, and his tastes remain timelessly stuck back there at the beginning of toddlerhood, even today.

When he was two years old, he wasn't speaking yet, not really. He would repeat back things that were said to him or parrot things he heard from books, but he wasn't forming independent sentences. And he couldn't articulate most sounds, so what he was saying was comprehensible only to us and only because we knew he was repeating something he had heard. However, he could read and type words on the computer and count to a thousand. I remember the first time he counted out loud, sitting on the floor one day, lining up Matchbox cars and saying, "uh, ka, uh, ba, ka..." (counting aloud "one, two, three, four, five..." of course) all the way up into the thirties, the total number of Matchbox cars we had back then. I was so incredibly proud of how smart he was; I videotaped him doing it.

Of course, I didn't think he was autistic back then. I thought autism meant that he couldn't be loving (which he is), that he wouldn't smile or interact (which he does), that he would bang his head or harm himself (which he doesn't). At the time, I thought he had a speech delay and was, like me, a shy, picky eater who was sensitive to sounds. Over time, I came to realize and accept that the particular collection of quirks I saw in my son did go by the name of autism. Looking back, the signs were there all along, he's been different from my daughter, different from the other babies I've known, different from the peers I see him with, from the time I felt his first movements, from the day he was born, from long before a vaccine entered his system. My son is autistic, and he was born that way.

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8 Comments

  1. Autismville says:

    I hear ya ... My little guy showed signs of autism from early on too and never really displayed any sort of "reaction" to a vaccine. Did the vaccines cause or contribute to his autism? I don't know? Did the wires I drove under or the cell phone I talked on or the cheetohs I ate or genetics or some weird virus or the laundry detergent I used or the material of his pj's or my breast milk or the carpet or paint in my house ... on and on I go...

    I really, really don't know...

  2. bella says:

    I know little about autism.
    I deeply respect that you are speaking your truth here and offering your voice and experience.
    I have heard much in the media about the vaccine "connection" and in my work as a doula the debate roars loudly.
    It is hard to not have someone or something to blame. That you have taken to your heart and loved in full your son, just as he is, without "reason" or explanation is quite stunning and moving. I am just a little in awe of this kind of courage.

  3. Casdok says:

    The signs for my son were always there to.

  4. Shawn says:

    I get just as annoyed when people ask if twins run in our family ...

    You could easily write around these posts for an essay to sell ...

  5. bella says:

    i know so little really about autism. Much of what I do "know" has come from the media and I am quite aware of the vaccine question. in my work as a doula the issue of vaccines and its link to all sorts of things it hotly debated.
    I find it quite brave of you to speak your truth. When things happen that hurt us or surprise us, we want a "reason", explanation, someone or something to blame. It takes a courage to just let what is be what it is.
    As usual, I am just a little bit in awe of you.

  6. Megan says:

    My son, too, is on the autism spectrum. I have evidence that he was wired that way from the start. As with the many families I know who have kids "on the spectrum" we have had to go through a process of digesting this information and coming to terms with it. People do it at different rates and in different ways. I heard a speaker just last week who talked about the different "camps" of families of autistic kids. I leaned over to my friend and whispered - "I'm glad you're in the 'whatever' camp with me!" I love my guy! He's great. I just try to be the best parent I can be to him, as I do with my daughter, who I parent a bit differently.
    XOXOXO

  7. Wayward Son says:

    It is disconcerting when others feel free to regret our choices based on their lives. It is even scarier to think that another parent would forgo vaccines thinking that because you have a vaccinated child with Autism they will be able to sidestep the issue—extremely faulty logic, no?

    On the flip side it is uplifting that you are choosing to deal with Autism through love. It is clear to me that you love your son completely and that is all that really matters. It is not as though raising children is a breeze for anyone or any condition.

    Damn, you have gone and made me think of something besides myself again!

  8. Guilty Secret says:

    That was beautifully-written and very informative. It made me angry (for you, not at you!) and sad, and happy all in turn.

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